#Corona Risiko kalkulieren.
Wie groß ist deine Chance im Spital zu landen oder an #LongCovid zu erkranken? Finde es raus.
Ich finde das gehört in jede Zeitschrift 
“The revolution isn’t happening if it’s not accessible. The revolution isn’t happening if you don’t listen to some of your most vulnerable members.”
Out today in Deceleration: "Mask blocs" in #Texas support the sick, #disabled and otherwise COVID-Conscious communities, providing vital mutual aid amid attacks on public health. https://deceleration.news/texas-mask-blocs-covid-19-federal-and-state-attacks/
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"O’Sullivan and others fail to recognise the likelyhood that most Long Covid patients will have already tried to improve their condition through psychological and behavioural approaches ..."
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I know ther is another ADHD drug that pwLC have been using off label with some success. Can’t remember which one. (Not vyvanse or adderall).
My brain fog issues have been cyclical for over 5 years now. So is Wellbutrin definitely helping, or would I have just been in an upswing anyway, I cannot say for sure. Just happy to have some clarity at this point.
End
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A couple of times, I was actually too productive and ended up crashing the next day. So I have to be careful (as always) about how much I do.
I’ve been at 200mg for about 4 months now and not only has my short term focus improved, but my other LC brain damage issues have improved as well. My brain fog, memory, and processing speed are much better. I can read for longer periods of time. Music still hurts my head though.
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Personal anecdote re #LongCovid:
I’ve been taking Wellbutrin for a number of months to improve focus for presumed ADHD. (I took a test but it came up inconclusive. I don’t want to take the test again because it triggered a LC flare.) Anyhoo, at first I didn’t think the medication was doing much. My dosage was slowly titrated up. When I got to 200mg, I suddenly noticed a significant improvement in focus for several hours a day.
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Im #Koalitionsvertrag sagen #CDU #CSU #SPD zu, Forschung und eine bessere Versorgung bei #LongCovid #MECFS #PostVak zu fördern. Details gibt es nicht. Umsetzen dürfen das neue Minister für Forschung (CSU) und Gesundheit (CDU). https://tagesschau.de/inland/koalitionsvertrag2025-100.pdf
From @meresearchuk
Misdiagnosis: Delayed receiving of an accurate diagnosis of ME/CFS or long COVID leading to inappropriate management. Receiving of an inaccurate diagnosis of ME/CFS or long COVID leading to dangerous oversights.
Read more - https://bit.ly/4lnhqV0
The #Zepbound at 2.5mg has also made my appetite much more normal. And my mood is greatly improved. My body feels less inflamed as well and the constant low-level pain I've had for many years is greatly decreased.
I'm even sleeping through the night and not waking up until my alarm. I haven't done that in at least 12 years. Various sleep aids I've tried over the years have never had this result.
I'm still not quite ready to resume exercising but I feel like I might be able to soon. #LongCOVID
I saw my sleep medicine doc yesterday for my annual check-in about my extremely severe sleep apnea (I've got one of the worst cases any of the various sleep doctors I've been to have ever seen). They boosted my pressures a little bit and I'm going to have an overnight pulse oximetry study soon to see if my O2 saturation is going too low at night as a result of still recovering from #LongCOVID
I'm 3 weeks into #Zepbound and it is nothing short of miraculous for lifting brain fog and sleep.
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“In fact, rather than being resistant to psychological explanations and therapeutic interventions for Long Covid, we generally tend to be quite open to them. Until, that is, experience shows us that this route to a cure is a dead end.”
Suzanne O’Sullivan’s new book ‘The Age of Diagnosis’ and her curious characterisation of Long Covid as a psychosomatic condition
Critical review by a GP who has long Covid
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
Hoffnung für präpandemisch ME/CFS-Betroffene: Unter den Expertinnen und Experten sind einige führende ME/CFS-Forschende, darunter Prof. Scheibenbogen, die sich bekanntlich intensiv mit ME/CFS beschäftigt.
Vor der endgültigen Beschlussfassung steht wohl im Mai 2025 noch ein weiterer Schritt an.
Weiterführende Infos und u.a. Protokolle von den Sitzungen findet ihr auf: https://www.bfarm.de/DE/Arzneimittel/Zulassung/Zulassungsrelevante-Themen/Expertengruppe-Long-COVID-Off-Label-Use/_node.html
#MECFS #LongCovid #OffLabelUse #Gesundheitspolitik #Medikamentenzulassung #Arzneimittelversorgung
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Just went to the "Live Well" team induction meeting thing, they're a service for folks living with #LongCovid and other #ChronicIllness and I am really pleasantly surprised at the compassion and willingness to find ways to support people, even if they can't attend the official things they're running.
It seems like a really great service - and they employ folks with lived experience to inform it!
@riffreporter Ebenfalls auffällig: Österreich war schneller – dort gibt es bereits #OffLabel Medikamente als Kassenleistung – und hat zudem deutlich mehr Medikamente auf seine Liste aufgenommen. Über die Erfahrungen dort mein aktuelles Interview mit Prof.
Kathryn Hoffmann: https://riffreporter.de/de/wissen/oesterreich-off-label-liste-long-covid-mecfs-interview-kathryn-hoffmann-corona Ob die zunächst also max. 4 Wirkstoffe (der fünfte ist zur Prophylaxe) auf #LongCovid beschränkt bleiben, wie vom Bundesgesundheitsministerium
initial beauftragt, oder wie in Österreich auf #MECFS #POTS #PAIS erweitert werden, lässt die BfArM-Publikation noch offen. 
· People with recent COVID-19 at higher risk for other viral and bacterial infections
· A 15-day course of #Paxlovid did not “significantly improve health outcomes in participants with #LongCOVID
· 2. study showed that Paxlovid taken within 5 days of infection with COVID-19 did help with the acute phase of COVID-19 in children
· Rapamycin, a drug used for organ transplants, may help alleviate symptoms of myalgic encephalomyelitis #MECFS
https://thesicktimes.org/2025/04/08/research-updates-april-8/
5 Wirkstoffe sollen auf die #OffLabelListe #LongCovid und könnten künftig von den Kassen übernommen werden. Es folgt ein 
dazu, die ziemlich aberwitzige Geschichte dieser Liste hatte ich hier @riffreporter recherchiert: https://www.riffreporter.de/de/wissen/long-covid-off-label-therapie-mecfs-kommission-lauterbach-krankenkasse 
I came across this tool in which you can calculate your risk of going to the hospital or developing long(er) term symptoms due to your next Covid infection. It's not perfect (there are a couple of risk increasing illnesses missing in the list) but interesting nonetheless:
2,500 steps before breakfast cos it was shower day for B today
No wonder I’m struggling to recover from my #LongCovid crash on February 6th
I think this is important.
Certain cytokines (IL 17 family) can increase sociability and cause anxiety, depending on which region of the brain they act.
We live in an anxiety crisis that got worse and worse since 2020.
The great majority of the population caught Covid 19 since 2020.
https://neurosciencenews.com/immune-il17-anxiety-28559/
Anyone to link the two together?
