From Tumblr, sorry, explaining why pain scales don't work with people with chronic pain issues.
My ground state is a 5.
https://www.tumblr.com/theabstruseone/781752991210405888?source=share
From Tumblr, sorry, explaining why pain scales don't work with people with chronic pain issues.
My ground state is a 5.
https://www.tumblr.com/theabstruseone/781752991210405888?source=share
2/2
It's not worth it to reoptimize Medications A or C until I know whether or not it's worth it to continue taking Medication B. So now resuming Medications C and D to deal with shortfall in Medication A's efficacy, which has been caused by starting Medication B.
And how very grateful I am that at this moment in my history I have stable access to Medications A-D+. Has not always been the case.
Tho grateful...the meds tinkering is still exhausting.
Healthcare Chronicle 2025-04-24
1/2
This month, finally got Medication A optimized to address Condition A, which is a major super huge big win. Then began Medication B to address Condition B. Side effects from Medication B aggravate Conditions A and C, but it takes a month or so to find out if Medication B actually helps Condition B.
Got this walking stick awhile back. Haven't needed to use it as much since I started chiropractic treatment along with my acupuncture, but it's one helluva "swagger stick"!
Also, hand-crafted and made in Ukraine!
Also, I'm a Leo; ROWR!
#Aging #AgingGratefully
#ChronicPain
This is a whole mood this week.
#ChronicPain #hypermobility #NEISvoid
5am.
Pain has been flaring all night.
Tired, exhausted, but just can't sleep past the pain yet.
“Neuroinflammation”: does it have a role in chronic pain? Evidence from human imaging | PAIN, November 2024
https://journals.lww.com/pain/fulltext/2024/11001/_neuroinflammation___does_it_have_a_role_in.8.aspx
Holy fuck
It took me 103 days to get my Lyrica prescription filled. Script sent January 6, filled April 19.
No wonder it feels like this year has just been surviving pain. It has.
It bites being an overachiever!
I was preparing the house all day yesterday, consolidating furniture into as few spaces as possible for the movers for my soon-to-be-ex for today. And then lots and lots of sweeping. Before that, I was actively moving lots of stuff from the car to his new apartment, on two consecutive days.
I managed to invoke what I think is a combo fibromyalgia flare-up and ME/CFS crash all in one.
I don't regret it, but one's body sure has a way of reasserting itself!
This one's for my people in the #ChronicPain and #ChronicIlness worlds...I'm now up to 17 pills a day, and I've having trouble managing them (they've ended up all over the floor a few times). How many pills you all on? Should I be asking for fewer?? Anyone got any cool ideas on homemade blister pack day-to-day thingies?
Blogpost giving some tips on how to maximise the usefulness of appointments with doctors.
https://www.carermentor.com/p/how-to-close-patient-doctor-disconnects
#DoctorPatientRelationship @chronicillness
@spoonies
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
It's such a strange feeling to be grateful for one kind of pain because at least it isn't a different kind of pain.
I've had chronic illnesses for most of my life but I don't know if I'll ever entirely get used to this.
https://youtube.com/shorts/mi7cS5z2cJY?feature=shared
ENG: Observational study on medical #cannabis use for 300 people over 50 proves medical #weed effectiveness. Patients favor high CBD low THC oral dosing ( balanced 1:1), to reduce arthritic/chronic pain and help sleep without having to chain smoke/vape. If CBD dominantes there is almost no psychotropic effect.
ESP: Ciencia moderna confirma que #marijuana medicinal alivia dolor crónico, artrítis y sueño. Estudio con 300 personas de más de 50 años revela que pacientes prefieren gotas o comestibles altos en CBD y bajos en THC. Extracto 1:1 de flor resulta aún más efectivo y evita tener que fumar/vapear para sostener efectos analgésicos/ansiolíticos. De dominar el CBD el efecto psicotropico es nulo o mínimo.
#memercredi #viernesdememes #humour #funny #humor #salud #regenerativemedicine #humornegro
#HumourNoir #science #health
#chronicillness #ChronicPainMemes
#chronicpain #thc #cbd #cbn #thca
#sleep #arthritis #cannabinoids
#cannabismedicinal #cannabismedical
ALT-TXT: Monochrome photo of old indigenous woman holding a huge joint between her swollen fingers. Text: SIGNS OF AGING: Swollen Joints
Having a bit of an existential crisis today about my disability, because of how varied my day to day experience can be. Asking for this was hard. The fact that it didn’t surprise my doctor and he thought it was a good idea was somehow…harder?
#ChronicPain #NEISvoid #hypermobility
An example of the thoughtless or insensitive comments people with chronic illnesses can sometimes hear
From a blog post by an Irish woman with ME who has become a published writer
https://solongasicanbreathe.wordpress.com/2025/04/14/walking-ambling-stumbling/
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
@chronicillness
@spoonies
@disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
FYI for anyone curious about using #cannabis for pain. Most of the studies seem to be on using it for #ChronicPain, but those suggest it works best when there's a roughly equal amount of THC and CBD in the dose.
Start with a dose of 5mg of both. Increase after a week if needed.
(I'm not a doctor. I'm just relaying results of my reading.)
There are few effective treatments for many types of #chronicpain. This writer knows, having tried them all. So he writes about it. And it helps ease the pain. It might seem farfetched, but scientific research has demonstrated that writing can reduce symptoms of stress, anxiety and mental anguish in general, and because chronic pain has a significant mental component, writing can help ease physical pain, too. By Randall H. Duckett