social.coop

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/funny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funny</a> <a href="https://mastodon.social/tags/haha" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#haha</a> <a href="https://mastodon.social/tags/funnypic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funnypic</a> <a href="https://mastodon.social/tags/funnypics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funnypics</a> <a href="https://mastodon.social/tags/funnymemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funnymemes</a> <a href="https://mastodon.social/tags/funnymeme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funnymeme</a> <a href="https://mastodon.social/tags/hahaha" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hahaha</a> <a href="https://mastodon.social/tags/ibsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibsmemes</a> <a href="https://mastodon.social/tags/ibshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibshumor</a> <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mastodon.social/tags/crohnsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsmemes</a> <a href="https://mastodon.social/tags/crohnshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnshumor</a>

Daryl the Admin 🇺🇦It's <a href="https://vmst.io/tags/skyrizi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#skyrizi</a> injection day. I missed the morning appointment on my calendar and just happened to have a mental spark of "isn't that supposed to happen today?"So I clearly need to do something better with my reminders/appointments/thingamajigs.Anyway, it's out and coming to room temperature.Still better than having to drive 2 hours for a 3 hour IV infusion, then 2 hours back (and after Benadryl!) like I was doing for Inflectra.Aren't bodies fun?<a href="https://vmst.io/tags/ibd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibd</a> <a href="https://vmst.io/tags/CrohnsDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CrohnsDisease</a> <a href="https://vmst.io/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://vmst.io/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicallyill</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmunememes</a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromemes</a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#spoonie</a> <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mastodon.social/tags/crohnsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsmemes</a> <a href="https://mastodon.social/tags/ibs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibs</a> <a href="https://mastodon.social/tags/ibsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibsmemes</a> <a href="https://mastodon.social/tags/ibshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibshumor</a> <a href="https://mastodon.social/tags/haha" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#haha</a> <a href="https://mastodon.social/tags/funny" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#funny</a>

Technische Universität MünchenScientists at our university and LMU University Hospital Munich combine dietary therapy with fecal microbiome transfer to improve long-term treatment for <a href="https://wisskomm.social/tags/Crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Crohns</a> disease. By reshaping the <a href="https://wisskomm.social/tags/gutmicrobiome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#gutmicrobiome</a>, they aim to sustain remission and reduce <a href="https://wisskomm.social/tags/inflammation" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#inflammation</a>: <a href="http://go.tum.de/395259" rel="nofollow noopener noreferrer" translate="no" target="_blank">http://go.tum.de/395259</a>📷 A.Eckert

Daryl the Admin 🇺🇦Wow! Linking a particular bacteria of the gut microbiome in a chain that could potentially be a source of major depression. Follow up research could also show how environmental contaminants combined with the metabolism of the gut microbiome could be linked to autoimmune and other conditions.Science is amazing! Can't wait to see where this drives other future research and, eventually, treatments.<a href="https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression</a><a href="https://vmst.io/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://vmst.io/tags/crohnsDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsDisease</a> <a href="https://vmst.io/tags/IBD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#IBD</a> <a href="https://vmst.io/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://vmst.io/tags/research" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#research</a>

Flare FreedomThis explains A LOT in my medical history, how about you? The research going on in this field right now is super exciting. Hopefully it continues 😕.<a href="https://mastodon.social/tags/inflammatoryboweldisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#inflammatoryboweldisease</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/medsky" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#medsky</a> <a href="https://mastodon.social/tags/healthygut" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#healthygut</a> <a href="https://mastodon.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mentalhealth</a> <a href="https://mastodon.social/tags/type2diabetes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#type2diabetes</a> <a href="https://mastodon.social/tags/inflammatoryillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#inflammatoryillness</a> <a href="https://mastodon.social/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disability</a> <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mastodon.social/tags/Ulcerativecolitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Ulcerativecolitis</a> <a href="https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://hms.harvard.edu/news/drawing-line-gut-microbiome-inflammation-depression</a>

qurly(not curly)joeThat would certainly explain it. <a href="https://mstdn.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mstdn.social/tags/crohnsDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsDisease</a>

SteggySuper busy day. Started with stepping in and cleaning up cat puke (!), then the <a href="https://sunny.garden/tags/gym" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#gym</a>, then Monday <a href="https://sunny.garden/tags/TaiChi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TaiChi</a> class, home for quick lunch, then to the Infusion Center for my final <a href="https://sunny.garden/tags/iron" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#iron</a> infusion. Then I had to nap, followed by cooking dinner. My belly is acting up again, though. Every time I try to eat “healthier” my gut tells me not today! 🤷‍♀️ Just another day in the life with <a href="https://sunny.garden/tags/Crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Crohns</a> disease. Finally have some time to relax and work on some <a href="https://sunny.garden/tags/crafts" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crafts</a>!

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/stomach" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#stomach</a> <a href="https://mastodon.social/tags/tummy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#tummy</a> <a href="https://mastodon.social/tags/stomachache" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#stomachache</a> <a href="https://mastodon.social/tags/tummyache" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#tummyache</a> <a href="https://mastodon.social/tags/ibs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibs</a> <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mastodon.social/tags/crohnsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsmemes</a> <a href="https://mastodon.social/tags/ibsmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibsmemes</a> <a href="https://mastodon.social/tags/ibshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ibshumor</a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnessmemes</a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillnesshumor</a>

Daryl the Admin 🇺🇦Skyrizi injection done. A five minute process is so much easier than a three hour infusion. Or the one hour infusion at a facility two hours away that the initial Skyrizi startup process involved.<a href="https://vmst.io/tags/Skyrizi" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Skyrizi</a> <a href="https://vmst.io/tags/Crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Crohns</a> <a href="https://vmst.io/tags/CrohnsDisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CrohnsDisease</a> <a href="https://vmst.io/tags/IBD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#IBD</a>

qurly(not curly)joe<a href="https://mstdn.social/@justafrog" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@justafrog</a> Despite a life-long bout with <a href="https://mstdn.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> disease (in remission for a while now, tyvm) I’ve never noticed that level of sensitivity to my stomach. My problems always involved my small intestines and it was mostly pain. Interestingly (to me anyway) there are no pain-sensitive nerves on the gut. Gut pain is due to tension-sensitive nerves being triggered by excessive stretching and pulling sensations.

qurly(not curly)joe<a href="https://mas.to/@innuendo" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@innuendo</a> I got 99 problems but GERD is not one of em. I have had multiple abdominal surgeries because of <a href="https://mstdn.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> disease, so maybe scar tissue is causing some kind of tension depending on how I’m layer out. I’ve also got 3 or 4 sheets of mesh in there to deal with some herniation from the surgeries.

Bob ThomsonI must be doing a bit better this morning as I was allowed to get up to the toilet, and I’m attempting to decipher France Inter 7/10 sur la radio. Coffee and yogurt so hopefully a none too painful 💩 to come, which I am dreading in case of any straining needed. Typically my Crohn’s has been so well behaved that I have a wee bit of difficulty once a day at the moment.<a href="https://mastodon.social/tags/crohnsdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsdisease</a> <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mastodon.social/tags/chronickidneydisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronickidneydisease</a> <a href="https://mastodon.social/tags/ckd" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ckd</a> <a href="https://mastodon.social/tags/kidneydisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#kidneydisease</a>

Science Updates"The big hope is to find active ingredients that would restore the functionality of disrupted mitochondria, in other words, to repair them in a sense. This would limit intestinal damage as a trigger for chronic inflammation processes," said Dr Dirk Haller.<a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#health</a> <a href="https://mastodon.social/tags/medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#medicine</a> <a href="https://mastodon.social/tags/IBS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#IBS</a> <a href="https://mastodon.social/tags/IBD" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#IBD</a> <a href="https://mastodon.social/tags/Crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Crohns</a> <a href="https://mastodon.social/tags/gut" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#gut</a> <a href="https://mastodon.social/tags/microbiome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#microbiome</a> <a href="https://mastodon.social/tags/research" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#research</a> <a href="https://mastodon.social/tags/science" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#science</a> <a href="https://www.labroots.com/trending/cell-and-molecular-biology/27926/mitochondrial-dysfunction-disrupt-microbiome-cause-crohn-s" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.labroots.com/trending/cell-and-molecular-biology/27926/mitochondrial-dysfunction-disrupt-microbiome-cause-crohn-s</a>

Bob ThomsonWell, I got a 9/9 on the Boston score for bowel prep, so I did it in well much as it was massively annoying and tiring.Better still, my Crohn’s is in clinical remission also, which is even better - more the result of restarting <a href="https://mastodon.social/tags/lowdosenaltrexone" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#lowdosenaltrexone</a> than the steroids I’d wager, as it was not great after the latter. Either way good news.Only concern is I have another check of my pancreas in 6 months due to a cyst that needs monitored. There is always something with <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a>

Bob ThomsonAs a veteran of colonoscopies, I’ve actually lost count, tomorrow’s is my 7th I think, this has to be the worst prep regime I’ve had yet. Usual drink of a litre of vile stuff 18:00-19:00 but the second lot is at 05:00-06:00 before the procedure at 08:30 - and I have to be in a taxi 06:15 to get there for 07:00. Not going to happen that. Will be later than 07:00 but last time there was a long time sitting about waiting anyway.<a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://mastodon.social/tags/crohnsdisease" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohnsdisease</a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#autoimmune</a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a>

Bob Thomson<a href="https://mastodon.social/@emsquared" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@emsquared</a> absolutely. Reminds me I need to book a taxi for a week today for a hospital trip - colonoscopy fun. <a href="https://mastodon.social/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> At least this time it’s paid for by the health service.

Robert MasseyPrep mostly done. So it's stage 1 of checking out how to deal with ongoing (37 years) Crohn's and diverticulitis disease tomorrow. First up is a colonoscopy, which always fascinates the scientist in me if nothing else. <a href="https://astrodon.social/tags/Crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Crohns</a> <a href="https://astrodon.social/tags/Colitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Colitis</a> <a href="https://astrodon.social/tags/medicine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#medicine</a>

Shiny Amygdala, ph.DSo, I questioned the nurse after the procedure if I had dietary restrictions and she said none. So, the day after the colonoscopy I ate sauerkraut (to repopulate my gut biome) raw carrots, I ate green beans towards the evening, salmon for dinner. Peanut butter on a rice cake for a bedtime snack. At about 6:30 in this morning I wake my excruciating stomach pain. Have to vomit. Can't vomit. Dry heaves. Abdominal pain At 12 noon the diarrhea starts in. It's about 2:47 pm and I'm still going at it. I read online documents on post colonoscopy care and found that a restricted diet is RECOMMENDED during the first WEEK after the colonoscopy I know this is graphic, but I'm pooping out nonstop carrots. Carrots. Carrots. Carrots 😭 I can't hold down any liquid whatsoever. My inclination is to halt all drinking for several hours until the diarrhea stops. The doctor office is closed so I can't ask them for advice. Does anyone have experience with this? Thank you so much *Crying in agony*<a href="https://neurodifferent.me/tags/colonoscopy" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#colonoscopy</a> <a href="https://neurodifferent.me/tags/intestines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#intestines</a> <a href="https://neurodifferent.me/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://neurodifferent.me/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://neurodifferent.me/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://neurodifferent.me/tags/nurses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#nurses</a> <a href="https://neurodifferent.me/tags/medical" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#medical</a>

NelI wish we had sliders irl like in vr, sometimes I want to be super small and wish I was tiny so I could be held, im also trying to be more okay with my size though. its tough sometimes having body dysmorphia and having folks talk about weight and body stuff around me. prednisone and crohns have made my weight fluctuate so much, I just want to feel like me again <a href="https://this.mouse.rocks/tags/crohns" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#crohns</a> <a href="https://this.mouse.rocks/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a>

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