News
Putrino Lab in New York City is looking for patients diagnosed before 2020 with “ME/CFS” to participate in research.
UK Government is asking for input on the recently published Interim Delivery Plan for ME/CFS.
https://colleensteckelmeiccinfo.substack.com/p/news-2023-august-14
#MyalgicEncephalomyelitis #MEcfs #niceguidelines #PwME #SevereME
Latest post from The Science Bit by Brian Hughes
“A science that does not allow opposing opinions abolishes knowledge.” Er, kind of
@s4me
Too much / so much info! Especially liking the myth busting talk by Prof Brian Hughes with its wide ranging big hits on anti-NICE, anti-science, conflicts of interest, embarrassment, philosophy and more in the #MECFS world of #NICEguidelines #LongCovid #CBT #GET #PEM amazing how many of these tangles I'm exposed to as a patient navigating a challenged system!
https://youtu.be/IM6x7MbQwOA
