it brings me absolutely no joy to say "called it"
RT @aj_boston@twitter.com
omg Apple just announced health data partnership with Elsevier at WWDC
🐦🔗: https://twitter.com/aj_boston/status/1533870152688623616
We need to stop "weighing the pros and cons" of prestige publishing like it's a theoretical problem with no impacts, and start seeing it as a problem whereby our failure of will to do the right thing props up some of the most dangerous surveillance conglomerates on the planet.
It was only a matter of time before a conglomerate that owns most biomedical knowledge, sells point of care apps and educational materials to doctors, and sells risk analytics to insurance companies got access to primary medical data.
https://twitter.com/json_dirs/status/1456072577902735362
The product is *not* some benign medication interaction app. The product is to sell influence over medical care and biomedical research through a series of advertising, recommendation, and ranking products sold to insurance and pharmaceutical companies.
https://twitter.com/lisalibrarian/status/1533920301020585984
The NIH is funding some of the underlying biomedical knowledge graph technology through its Translator project. The stated goal is to link primary research data with wearable and clinical data for "personalized medicine" and to target drug discovery.
The project can't possibly work for basic science -- it's a black box ML algorithm that gives uninterpretable results that couldn't guide basic research -- but it's perfect for the well-trod pattern of publicly funding tech to be scooped up and resold by circling companies
Knowledge organization is *political.* 7 of the 10 largest companies in the world are information companies. We need to cut ties *now,* and by rebuilding our knowledge organization systems we can make tools also intended for public use that combat the surveillance economy
@jonny I'd love to, but even I, as a highly technical person (run my own servers, write code all day every day, no smart watch) don't know how to avoid it all or what infrastructure to build.
@savanni
working on exactly this!!!!!
@savanni
not like I have all the answers, but a map is what we are missing!!!!
https://social.coop/@jonny/108434344250142021
@jonny I've done work in directions like this. Most of my day-to-day medical information is stored in an app I developed and the data never leaves my machine.
But I'm one person with very limited vision. I can wrest control of literally one thing. And even when I do, it's of limited use to anyone else.
So, I'm willing to work with other people. I just need to know where other people want to go.
@savanni
exactly. if I can assume by your instance you're a fellow horizontalist that is exactly the plan❤️
@jonny not heard that term before, so maybe?
@savanni
horizontal/ahierarchical organizing of the no gods no masters variety yno
write mad, edit with conviction.